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Advocacy Resources

Friends of Karen
Advocacy Resources, Financial Resources

Friends of Karen’s mission is to provide emotional, financial, and advocacy support for children with life-threatening illnesses and their families, in order to help keep them stable, functioning, and able to cope.

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Health Ecademy
Advocacy Resources

An online collection of advocacy information for patients.

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Patient Power
Advocacy Resources

Patient Power® is an online tool for patient information. Patient Power® is "dedicated to helping patients and their loved ones gain the knowledge needed to make the smartest choices about their health as they seek to fight back against a serious health concern."

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Health Advocate Inc.
Advocacy Resources

610-825-1222
Health Advocate, Inc., the nation’s leading healthcare advocacy and assistance company, serves millions of Americans nationwide through its more than 5,000 client relationships. It helps members navigate the healthcare system through a full spectrum of time- and money-saving solutions.

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Unite 2 Fight Paralysis
Catastrophic Injury Resources, Advocacy Resources

The non-profit organization is dedicated to the realization of curative therapies in the immediate future, and to achieve this goal will present a united & consistent message to government, industry, science, the media and the general public.

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Caring Voice Coalition
Financial Resources, Advocacy Resources

1-888-267-1440
Caring Voice Coalition is dedicated to building relationships with charitable organizations founded to help individuals and families affected by serious chronic disorders and diseases. Caring Voice will work together with these organizations to offer outreach and support services that directly benefit the patient community.

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The Schwartz Center for Compassionate Healthcare
Caregiver Resources, Advocacy Resources

617-724-4746
The organization supports and advances compassionate health care in which caregivers, patients and their families relate to one another in a way that provides hope to the patient, support to caregivers and sustenance to the healing process.

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Association of Organ Procurement Organizations (AOPO)
Transplantation Resources, Advocacy Resources

703-556-4242
AOPO represents and serves OPOs through advocacy, support, and development of activities that will maximize the availability of organs and tissues and enhance the quality, effectiveness, and integrity of the donation process.

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Medicare Rights Center
Advocacy Resources

1-800-333-4114
The Medicare Rights Center works to ensure access to affordable health care for older adults and people with disabilities through counseling, educational programs and public policy initiatives.

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HealthCareCoach.com
Advocacy Resources

HealthCareCoach.com is a project of the National Health Law Program (NHeLP), a non-profit legal organization. For more than 30 years, NHeLP has worked to improve access to quality health care, educate consumers about their legal rights and provide information and policy advocacy.

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Tri-State Advocacy Project
Catastrophic Injury Resources, Advocacy Resources

1-877-774-6380 
An advocacy organization for spinal cord and burn injured survivors and amputees.

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Agency for Healthcare Research and Quality (AHRQ)
Advocacy Resources

301-427-1364
AHRQ works to improve the quality, safety, efficiency, and effectiveness of health care for all Americans. Information from AHRQ's research helps people make more informed decisions and improve the quality of health care services.

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Medical Billing Advocates of America
Advocacy Resources

304-645-6389
The organization is committed to educating and arming the public with the knowledge they need to fight this battle and win the war against escalating healthcare costs. Its mission is to ensure that no one pays a dime more than they truly owe for medical care.

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Patient Services Incorporated (PSI)
Advocacy Resources, Financial Resources

1-800-366-7741
PSI is a health insurance premium and co-payment organization for people who live with certain chronic illnesses and conditions.

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Pennsylvania Health Law Project (PA)
Pennsylvania Resources, Advocacy Resources

1-800-274-3258
PHLP is a nationally recognized expert and consultant on access to health care for low-income consumers, the elderly, and persons with disabilities. PHLP provides free legal services to lower-income consumers, seniors, and persons with disabilities who are having trouble accessing publicly funded healthcare coverage or services.

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Patient Advocate Foundation
Advocacy Resources

1-800-532-5274
Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases.

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