Heartmates

Resources for the Spouse, Family, and Loved Ones of a Heart Patient

Blood and Marrow Transplant Information Network (BMT InfoNet)

888-597-7674
Blood & Marrow Transplant Information Network (BMT InfoNet) is dedicated to providing transplant patients, survivors and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell and cord blood transplants.

Caitlin Raymond International Registry

800-726-2824
The Caitlin Raymond International Registry is a comprehensive resource for patients and physicians conducting a search for unrelated bone marrow or cord blood donor.

Center for International Blood and Marrow Transplant Research (CIBMTR)

CIBMTR collaborates with the global scientific community to advance hematopoietic cell transplantation and cellular therapy research worldwide. A combined research program of the National Marrow Donor Program® and the Medical College of Wisconsin, CIBMTR facilitates critical research that has led to increased survival and an enriched quality of life for thousands of patients. Our prospective and observational research is accomplished through scientific and statistical expertise, a large network of transplant centers and a clinical database of more than 300,000 transplant recipients.

BMT Support Online

BMTSupport.org is an interactive non-profit 501(c)(3) organization which seeks to motivate, empower and enlighten people with an interest in bone marrow transplantation through peer support, education and awareness of this difficult but potentially life saving procedure.

CordBloodForum.org

The mission of cordbloodforum.org is to serve patients by disseminating information about the availability and effectiveness of cord blood transpalnts for children and adults, and to facilitate communication among transplant physicians, transplant coordinators, cord blood bank personnel, and patients.

National Kidney Registry

The mission of the National Kidney Registry is to save and improve the lives of people facing kidney failure by increasing the quality, speed, and number of living donor transplants in the world.

Heart & Lung Institue, St. Joseph's Hospital and Medical Center

The Center for Thoracic Transplantation at St. Joseph's Hospital and Medical Center's Heart & Lung Institute in Phoenix, Arizona is proud to provide a lung transplant program.

US Transplant

Mended Hearts

Mended Hearts partners with 460 hospitals and rehabilitation clinics and offers services to heart patients through visiting programs, support group meetings and educational forums. Their mission is to “inspire hope in heart disease patients and their families.”

Boomer Esiason Foundation

The mission of the Boomer Esiason Foundation is to heighten awareness, education and the quality of life for those affected by cystic fibrosis, while providing financial support to research aimed at finding a cure.

C.L.A.S.S. Children's Liver Asociation for Support Services

C.L.A.S.S. offers a variety of ways to be both a source of support to families and a valuable resource to all affected by liver disease and transplantation.

Konnectology Kidney Transplant Guide

Konnectology is a step-by-step guide with tools to help patients work with their doctor as they consider kidney transplantation. It’s an objective source, funded by the National Institutes of Diabetes and Digestive and Kidney diseases.

DKMS

The DKMS mission is to save lives by recruiting bone marrow donors for leukemia patients. More than 20,000 DKMS donors have helped save lives by donating their bone marrow. DKMS is the largest bone marrow donor center in the world with over 2 million registered donors. However, there are still thousands of patients who cannot find their donor match. DKMS will continue to recruit bone marrow donors until every patient gets a second chance at life.

iCompassion - National Kidney Center

The mission of the National Kidney Center is to share compassion with individuals who are diagnosed with kidney disorders by supporting efforts for early screening, detection and awareness of treatment options that include paired donation. The National Kidney Center will work to educate each generation about the risk factors that can lead to kidney disease and the treatment options available to live a full life. The National Kidney Center also provides an online community where individuals with kidney disease can connect and share information with family members, friends and care providers.

Seattle Cancer Care Alliance

800-804-8824

Alliance for Paired Donation

877-273-4255

Second Wind Lung Transplant Association, Inc.

1-888-855-9463
The organization works to improve the quality of life for lung transplant recipients, lung surgery candidates, people with related pulmonary concerns and their families, by providing support, love, advocacy, education, information and guidance through a spirit of service, adding years to their lives and life to their years.

International Society for Heart and Lung Transplantation (ISHLT)

972-490-9495
ISHLT is a multidisciplinary, professional organization dedicated to improving the care of patients with advanced heart or lung disease through transplantation, mechanical support and innovative therapies via research, education and advocacy.

James Redford Institute for Transplant Awareness (JRI)

310-559-6325
JRI is a nonprofit organization dedicated to educating the public about the need for organ and tissue donation. Its goal is to raise awareness of this issue through film, educational outreach, and on the web.

Transplant Experience Journal

The Transplant Experience Journal is a collection of stories, pictures, and personal experiences from families about what it has been like to have a liver, kidney, heart, or lung transplant. It represents the "collective wisdom" of these families as well as their health care providers.

TransWeb

734-764-4141
TransWeb features real people's experiences, the top 10 myths about donation, a donation quiz, frequently asked questions with answers, as well as educational reference and videos of U.S. and World Transplant Games. For adults and teens, TransWeb features Give Life: The Transplant Journey a multimedia trip through the donation and transplantation process.

Gift of a Lifetime

A guide to understanding organ donation.

International Society for Organ Preservation (ISOP)

213-229-5600
ISOP works to advance the science and technique of organ preservation for transplantation and disseminate knowledge related to the fields of organ preservation and transplantation.

NATCO: The Organization for Transplant Professionals

913-895-4612

Transplant Foundation, Inc.

305-817-5645
Transplant Foundation focuses on providing both financial and emotional support to transplant patients.

Transplant Speakers International, Inc.

1-877-609-4615
The organization works to improve or save lives through public education given via a donor-recipient perspective.

LifeLink Foundation

813-253-2640
LifeLink Foundation is a non-profit community service organization dedicated to the recovery of life-saving and life-enhancing organs and tissue for transplantation therapy. The Foundation facilitates the donation of needed organs and tissues, support research, improve clinical outcomes of patients post transplantation and works closely with the United Network For Organ Sharing (UNOS).

National Minority Organ Tissue Transplant Education Program (MOTTEP)

1-800-393-2839
National MOTTEP works to decrease the number and rate of ethnic minority Americans needing organ and tissue transplants. MOTTEP will achieve its mission by implementing a national information and education campaign that emphasizes both prevention and intervention strategies.

Nicholas Green Foundation

818-952-2095
The Nicholas Green Foundation, set up by the Green family, is a non-profit organization dedicated to furthering the cause of organ and tissue donation around the world. It does this by spreading information to increase awareness of the shortage of donors everywhere. It can also support a broad range of children's causes. It produces videos and helps organize special events.

Scientific Registry of Transplant Recipients

1-800-830-9664
The Scientific Registry of Transplant Recipients is an ever-expanding national database of transplantation statistics. Founded in 1987, the registry exists to support the ongoing evaluation of the scientific and clinical status of solid organ transplantation, including kidney, heart, liver, lung, intestine, and pancreas.

Transplants for Children (TFC)

210-949-1212
TFC is dedicated to assisting young organ and tissue transplant recipients and their families in effectively coping with the emotional, financial, and social challenges that arise before, during and after transplantation.

Transplant News

1-800-521-4323
Transplant News is the only independent e-weekly and monthly newsletter providing up-to-the-minute information on developments in organ, tissue, eye, cell and bone marrow procurement and transplantation. Transplant Communications, Inc., was formed in 1995. In addition to the newsletter, Transplant Communications publishes the International Transplant Directory, now in its 11th printing.

Bone Marrow Foundation

1-800-365-1336
The organizatioin works to improve the quality of life for children and adults who are undergoing transplantation as a life saving treatment for leukemia, Hodgkin's and non-Hodgkin's lymphomas, multiple myeloma, aplastic anemia, severe combined immunodeficiency, neuroblastoma and many other cancers and genetic disorders. The Foundation does not limit assistance to a specific disease, type of transplant or age range. All of the foundation’s services are offered free to patients and their families.

Decision: Donation

301-443-7577
Decision: Donation - A School Program That Gives the Gift of Life was created in response to the U.S. Department of Health and Human Services' former Secretary, Tommy G. Thompson's, vision of a model instructional package for high schools that will educate the nation's youth about the importance of organ and tissue donation and the need to make an informed decision about whether to be a donor and share their donation wishes with their families.

American Society for Transplant Surgeons (ASTS)

703-414-7870
ASTS is committed to fostering and advancing the practice and science of transplantation for the benefit of patients and society.

American Board for Transplant Certification (ABTC)

913-895-4603
The American Board for Transplant Certification is an independent, not for profit organization that was founded in 1988. Its purpose is to award a voluntary, non-governmental certification credential, "Certified Clinical Transplant Coordinator (CCTC) or "Certified Procurement Transplant Coordinator (CPTC)," to qualified transplant professionals who have successfully passed the certification examination, which represents a standard of competence.

Association of Organ Procurement Organizations (AOPO)

703-556-4242
AOPO represents and serves OPOs through advocacy, support, and development of activities that will maximize the availability of organs and tissues and enhance the quality, effectiveness, and integrity of the donation process.

Donate Life America

804-782-4920
Donate Life America, formerly the Coalition on Donation, was founded by the transplant community in 1992 to educate the public about organ, eye and tissue donation and avoid duplication of effort.

Gift of Life Donor Program

215-557-8090
The non-profit agency serving the eastern half of Pennsylvania, southern New Jersey and Delaware, is responsible for recovering and distributing organs and tissues used in life-saving and life-enhancing transplants.

International Institute for the Advancement of Medicine (IIAM)

570-496-3400
IIAM works with organ procurement organizations, tissue banks, hospitals, hospice programs, funeral directors, medical examiners, and individual donors throughout the United States in offering donation of organs and tissues for research and education.

International Pediatric Transplant Association (IPTA)

856-439-0500
IPTA is dedicated to promoting technical and scientific advances in pediatric transplantation and to advocating for the rights of all children who need transplantation.

American Association of Tissue Banks (AATB)

703-827-9582
AATB is the only national tissue banking organization in the United States, and our membership totals more than 100 accredited tissue banks and 1,100 individual members. These banks recover tissue from more than 30,000 donors and distribute in excess of two million allografts for transplant annually.

MatchingDonors.com

781-821-2204
MatchingDonors.com is a venue where patients and potential donors can meet and communicate, and hopefully expedite a donor agreeing to give a patient a much-needed organ.

National Bone Marrow Transplant Link (nbmtLINK)

1-800-546-5268
The mission of nbmtLINK is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services.

Transplant Living

1-888-894-6361
Transplant Living is a website full of information, resources, and news about transplantation. The site can also be personalized for the patient’s specific needs.

Nielsen Organ Transplant Foundation (FL)

904-244-9823
The NOTF works to improve the quality of life for organ transplant patients in Northeast Florida. Its programs include financial assistance, donor awareness, mentoring, information and resources.

National Living Donor Assistance Center

703-414-1600
The organization provides financial assistance to those who want to donate an organ, priority is given to individuals not otherwise able to afford the travel and subsistence expenses associated with living organ donation.

TIGER Transplant Fund

The TIGER Fund coordinates medical data on organ transplantation, organ donor information, white papers about transplantation, liver disease, liver health, and family support programs for transplant families, and caregivers. It also offer a number of ways to help the transplant community with direct aid, grants and gifts.

Family House (Pittsburgh, PA)

412-647-7777
Family House provides a special "home away from home" for patients and families who are in Pittsburgh for treatment of serious or life-threatening illnesses.

The Mason House (GA)

404-712-5110
The Mason House is a private retreat that offers low cost housing for organ transplant candidates, recipients, living donors, and families.

Gift of Life Transplant House (MN)

507-288-7470
A relocation resource for transplant patients of Mayo Clinic in Rochester, Minnesota.

National Kidney Foundation

1-800-622-9010
The National Kidney Foundation, Inc (NKF)., is the major voluntary health organization dedicated to preventing kidney disease, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation. The NKF achieves life-saving results today through the contributions of a generous public including participation in NKF signature initiatives such as the Kidney Cars Vehicle Donation program, Kidney Walks and the NKF Golf Classic.

American Kidney Fund

1-800-638-8299
The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts.

Transplant Recipients International Organization, Inc. (TRIO)

1-800-874-6386
TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.

Transplant Experience

1-800-510-6990
Transplant Experience is a site dedicated to helping kidney, liver, and heart transplant patients.

Bone Marrow and Cord Blood Donation and Transplantation

This website is a program of the U.S. Department of Health and Human Services. It provides access to information about bone marrow and cord blood transplants. This includes information about patient resources, current research and legislation.

Paired Donation Network

800-532-0642
This website is for patients and transplant professionals who wish to learn more about Paired Donation. The website is designed for individuals who have little or no medical knowledge and also for individuals who work in kidney transplant programs who want to be able to offer Paired Donation to their patients.

Transplant Buddies

Established in 1999, the TransplantBuddies site provides information about the transplant process, resources covering drugs and side effects, and daily discussions about living life as a transplant patient. The site also includes members Photos, Life stories while covering experiences of both transplant recipients and donors.

Organ Procurement and Transplantation Network (OPTN)

1-888-894-6361
The Organ Procurement and Transplantation Network (OPTN) is the unified transplant network established by the United States Congress under the National Organ Transplant Act (NOTA) of 1984.

OrganDonor.Gov

The official U.S. Government web site for organ and tissue donation and transplantation, www.organdonor.gov, is maintained by the Health Resources and Services Administration (HRSA), Healthcare Systems Bureau (HSB), Division of Transplantation, an agency of the U.S. Department of Health and Human Services.

United Network for Organ Sharing (UNOS)

1-888-894-6361
The UNOS mission is to advance organ availability and transplantation by uniting and supporting our communities for the benefit of patients through education, technology and policy development.

American Diabetes Association

American Liver Foundation

1-800-465-4837

National Marrow Donor Program - Be the Match

1-800-627-7692
The NMDP manages the world’s largest registry of marrow donors, organizing the recruitment, search, and matching process.

American Heart Association

1-800-242-8721

American Lung Association

1-800-586-4872

National Heart, Lung and Blood Institute (NHLBI)

301-592-8573
The NHLBI is an organization dedicated to research of the diseases of the heart, lung, and blood. It provides patients with a website full of information related to that research and current treatment options.